Families meetings

2015 ELA Families / Scientists meeting

Each year, the ELA association organizes a meeting for patients and their families. Many researchers coming from all around the world will present the latest scientific and medical advances and answer the questions of patients and families. This annual event is an exceptional opportunity for patients and their families to interact with scientists specialised in leukodystrophies and myelin diseases and learn from their diseases.

The 2015 meeting will take place on March 28-29, 2015 in Paris (France).



Saturday March 28


General Assembly of the Association

Scientific workshops

  • Workshop on ALD/AMN*
  • Workshop on Refsum disease*
  • Workshop on MLD*
  • Workshop on Krabbe disease*
  • Workshop on CACH syndrome, Alexander disease, MLC and Canavan disease*
  • Workshop on PMD and other hypomyelinating leukodystrophies*
  • Workshop on undetermined leukodystrophies*
  • Workshop on Aicardi-Goutières syndrome*

Plenary sessionPatients as research players


Sunday March 29

Forum: “Prevention, Care & Accompaniment”

*A translation service English/French, French/English will be available during the meeting.


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